Tuesday, October 30, 2012

Susan G Komen Race for the Cure 2012


Angels Among Us

I want to send a special thank you to KIM FLETCHER who essentially took my place on Race Day and in the preceding days with less than coherent instruction and guidance.  She did a great job and I had fun!!

And to the other angels who helped Kim and I pull it off - Eddie, Kris, Kerry and Patricia - thank you!!

Let the Fun Begin

I've been called a social being.  Its true.  I visited the booths, took pictures with other committee members, and said hello to anyone I knew.  I saw my nurse and signed their painting.  I showed my radiologist tech my new do - with and without my pink locks.  I made Hatcher cry but I swear I didn't mean to - my appearance just shocked her.

I almost missed the start of the Survivor Parade but I was able to wiggle in and found Charyce and Grace and other Young SOS members.  Some wanted to cry but I refused.  This was a celebration.  We are the lucky ones.  We are the ones who must celebrate for those who can't.

Once seated, the strangest and most wonderful thing happened.  A young man came up and hugged me from behind.  He kissed my bald head and said I looked beautiful.  And as he ran away, he said keep up the fight.  You gotta love it!!

Giddy as a child, I got up and went looking for trouble.  I found Ken, Norman, Richard, Charley, Jody Jo, DeLaine and Rudy and I'm sure many more.  The smile on my face was permanent.  It was a great day!


Crazy Looks Fabulous!
DeLaine and Lisa


 




Charyce - Best Advice - Get Over It
 
Josh and Eddie



Team Alien
Rudy - King of the Fat Bottom Girls


KISS Country's Jody Jo and Gnarley Charley


 

Teeny Tiny Mao with the Heart of a Giant

 
Race Committee 2012
 

Monday, October 22, 2012

Bald IS Beautiful

As mentioned, my hair began to fall out and I wanted to speed up the process.

I want to send a special thank you to Paula Wittman at JS & Company who has been rocking my hair cuts for years and agreed to shave my head when I was ready.  She warned that the shop was full and maybe I should wait.  I said no.  The date was set.  Even as I left, I don't think she realized how much I enjoyed the experience and how much I appreciated what she gave me in shaving my head and cutting my wig bangs.  Paula, I loved the whole process and love the look even more as time passes.


 
 
 

 

Dar and I ran around Macy's (at Fashion Fair) and I didn't even complain.  I was shocked however.  And the result was eyeliner and glitter and eyebrows.  Not bad.



If I haven't mentioned this, my brother has been great support during this journey.  When I told him I was going to shave my head and was maybe a little freaked out, he told me I had nothing to worry about.  He noted that we were twins once (long, funny story for another time) and he has a great head for rocking bald.  He was right.


Finally, I want the record to show that his roll is bigger than my roll.  LOL




Thursday, October 18, 2012

Chemo - Round 2

Chemo is not the hard part.  Its what happens later that gets ugly.

Dar and I got an early start and had breakfast en route.  There was a lot of girl talk and belly laughs.

I checked in, weighed in and blood letted.  I then went into an exam room.   Y took my blood pressure and asked what changes I noted in my body - joint pain in my right hip (walk) and dry nasal cavity (Vaseline on a Q-tip - this sounds especially fun - NOT).  All other systems normal.

Y left the room.  I sat and sat and sat and then I took action.  I stretched my Achilles tendons on each leg by doing ankle turns and lunges.  I did squats.  I paced the room.  I stared out the window and watched freeway traffic.  I paced again.  I opened the door and wandered into the hall.  Dar was at the other end wondering what was going on.  She closed the distance and told me several other individuals had come and gone and was curious what was going on with me.  I did not know but in hindsight I believe they were waiting for blood results.

L, the nurse practitioner, arrived just after Dar so we headed back in.  My blood came out great - everything is normal.  I will only need four shots again.  She realized I hadn't had a MUGA (See below.) so she wanted me to schedule one.  As I write this, I realize I did not do that.  Oops.

Dar and I returned to the chemo lounge where I had earlier scoped my chair for the day.  I chose a window seat with a view of the world and quick access to the snack table.  I liked this position and will attempt to get it for Round 3 as well.

Bag one was hung at 10:30am.  I was high and slurring my words by 10:35am.  As Dar pointed out, she didn't notice the difference.  Bag two arrived at 10:45 or so and the sleepiness washed over me.  Dar left to run errands with a plan to return at 1:30.  I attempted to setup music on my iPad to listen while I slept.  I could not recall my login info for Songza.  I nodded off.  It was a good sleep.  I awoke about 10 minutes before Dar returned.  Today's group was much more chatty so I fit in well.  The last bag finished and we were out of there.

Daily Shots: Chemo kills cancer and white blood cells that protect an individuals immune system.  Its important to boost my white blood cells in the days after chemo so that my immune system is not compromised too severely.  After Round 1, I only needed four shots.  Because my counts were good today, I will only need four rounds this time also. 

Here is where math, insurance, timing and bravery meet in a crazy formula.  Shots administered at the office are considered medical and I have a $20 co-pay.  Shots administered at home are considered pharmaceutical and I have a 30% co-pay with a max payment of $150.  Shots purchased for home come in a ten pack and cost over $5,000 or a $150 pharmaceutical co-pay.  So, using math (don't be afraid), ten shots administered at the office will cost $200.  Economically, shots at home are the better choice.  And because the office is closed on weekends, home is also a better choice for getting daily shots.  The real conundrum is am I brave enough to administer a shot to my belly or arm?  My soul-searched answer is yes.  Tomorrow morning my lead to a different answer. 

MUGA: MUltiple Gated Acquisition scan.  Apparently, there is a chemo drug that can be toxic to the heart muscle.  MUGA allows doctors to determine the left ventricular ejection fraction (LVEF) which is an excellent measure of overall cardiac function.  The ejection fraction is simply the proportion of blood that is expelled from the ventricle with each heart beat.  For instance, if the left ventricle ejects 60% of its blood volume with each beat, the LVEF is 0.6. (A normal LVEF is 0.5 or greater.)  The first one will be my baseline.

Tuesday, October 16, 2012

Wigs! Hats! Scarves! And more....

Marlene Giusti and Hollywood Wigs:

I cannot say enough about my experience with Marlene, owner of Hollywood Wigs.  She is the kindest, most creative and most caring individual.  I was very skeptical the first time I entered her store and I left excited about the opportunity baldness would provide.

My hair began to fall out last week - just a few strands here and there.  And then on Sunday, it began falling faster.  I made an appointment with Marlene for Monday and I made an appointment with my hairdresser to shave it on Wednesday.

In our first appointment, Marlene spent two hours showing me every option, color and style, that she thought would look good or that I would like.  I had fun.  I learned a lot.  I narrowed the options which you voted for via FB.

I bought wig #2.  Her name is Erika.  And I brought home a sassy pink number to wear race day.  And I will wear it proudly to represent Hollywood Wigs.

And then I went a little crazy:
     Burgundy ball cap with a jeweled cross on top
     Pink Hawaiian print visor that can be worn with or without the head cover
     Blue cotton scarf
     Pink knit cap with gathers that can be worn front or back
     Black hat with short brim and gray buckled bow

I'm sure there was more but my memory is foggy.

Whether you need a wig or want to make a change, call Marlene at Hollywood Wigs.  She will show you how fun and convenient and fashionable a wig or scarf or hat can be.

Update

Plastic Surgeon:

I met with Dr. Plastics to discuss reconstruction and augmentation.  Currently, I do not anticipate either option.  I'm lucky. 

Side Note:  I was asked to remove all clothing above the waist and put on a robe.  I've heard this A LOT in the last 8 weeks, so I complied.  However, the robe, although an actual cloth robe, had not been washed recently.  It stank of old lady perfume.  I stank of old lady perfume for the rest of the day.  Gross, right?!

General Surgeon:

I met with Dr. G and she examined my incisions.  Both incisions are healing well.  She removed the one stitch that was driving me crazy and now that area has healed.

My concern was a dark area near the lower incision.  Dr. G used ultra sound to scan the area and verified that it is fluid build up.  Because of the large area removed, it may take up to six months for the void in my breast to absorb the fluid and heal.  The void is huge.  Again, I'm lucky.

Fighting Germs:

I woke up Saturday with a raw, swollen throat.  I thought I was done.  However, completely out of character, I cancelled all plans and stayed in bed.  I slept away half the day, gargled with salt water and dosed with Airborne.  I went to bed early and repeated on Sunday.  (Mama Sharon was very proud).

Wednesday, October 3, 2012

And the blood test shows...

Daily Shots:

In the days after chemo, I am given shots to increase my white blood cell count. Chemo kills cancer AND the cells that keep me healthy. Irony?

PacMan Visualization:

Chemo = PacMan. Cancer = Dots.

PacMan is kicking butt. My right boob lit up as PacMan attacked the cancer cells left behind by the lumpectomies. Most alarming is that PacMan has to expel his waste. The fight is ugly and acidic.

Fighting Ground (me):

I'm good. Tired so I am sleeping more. Achy so I am moving slow. Loved and supported so I am GOOD.

Blood Results:

PacMan 1
Cancer 0

My white counts are above normal and the remaining tests are normal.

What's Next:

Walking often. Sleeping more hours. Eating carbs and leafy greens.

October 17, 2012 8:30am - Round 2